Deleted
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Post by Deleted on Dec 9, 2013 18:26:48 GMT
Has anyone been assessed, diagnosed as BPD/EUPD and then discharged from the mental health team (basically fobbed off)? And then tried to access help for it again?
I was diagnosed with traits because I was seen as having stability in life...well, now I don't have any of that stability left, and things are getting worse again. But I'm afraid I'm just going to get, for lack of a better word, f***ed around? Because last time was a totally pointless and painful exercise, long story short.
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Post by lollipopz on Dec 9, 2013 19:59:36 GMT
I've been mucked about a bit too by the cmht.
Spent 2years seeing a cpn, trying various combinations of meds (including 3 anti psychotics and lithium), cat therapy, another cpn before eventually being told I'd be referred on to the personality disorder service and discharged from
Cmht.
When I went back 3months later he told he seemed to have forgotten the referral and that now the waiting list is so long that the PD service are no longer accepting referrals.
My care coordinator had been in both these appointment and was of the same understanding as me.
They've now said actually they have referred me and its a
3 mth wait.
And I've been told by my gp I'm lucky to have had this much support, which I recognise and appreciate, but I'm still here another 2yrs down the line since I first saw the cmht (which was 7yrs after I first started having problems) and I've since been sacked for misconduct, been struck off the register so can't do what I'm qualified for, have been unemployed for 2years, and had to sell my flat and live with my mum again.
Overall, I just feel like once you have a BPD diagnosis, nobody really wants to have to help.
I'm sorry you've also experienced such a battle to try get help and also been brushed off like you're not important enough because you have a PD diagnosis.
It's cheaper and easier when they can just throw meds at someone.
Don't give up though.
Xx
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Deleted
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Post by Deleted on Dec 9, 2013 22:57:04 GMT
I was given a CPN whom my health visitor knew about, but I never met her or learnt her name  That sucks, I have heard many similar stories and I agree that they tar you with the PD brush and then leave you to it You'd think they'd keep in mind how high suicide rates are among BPD...maybe this is a big factor as to whp |
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matt
Newbie
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Post by matt on Dec 9, 2013 23:20:15 GMT
When I was in hospital and subsequently sectioned it was under a particular mental health team. When I was realeased from the mental health unit I had to go and stay at my Mum's because I'd lost my job and therefore my flat. My Mum's address is outside my mental health team's area but they kept seeing me for 6 months then discharged me. I had to go through the whole process of trying to access the mental health service for the team that served my new address which was pretty difficult. Even with many years of my records and hospitlisation and sectioning they tried to dismiss me. Basically getting to speak to someone on the phone who would advise me to speak to my GP or give me a helpline number to call.
Like most things I've discovered with the mental health service, you need to kick up a bit of fuss to get taken seriously. Never just accept what they say if you don't agree, and absolutely draw attention to your risks in no uncertain terms. I got someone to write a letter to my GP and the mental health team highlighting my past, the risk I posed to myself, and suggesting that not to allow me access to services was a dereliction of care. I have since gained access to services and have weekly psychotherapy sessions and regular medication reviews with a psychiatrist.
If you don't feel like you are getting the help you need, kick up as much fuss as you can about it until you get what you want.
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