|
Post by ellief on Oct 6, 2013 15:17:34 GMT
Hey, so I was wondering if people have had treatment for their eating disorders what have they had? I've had no treatment so far because i fell through CAMHS twice, which was incredibly frustrating but I wasn't well enough to fight for more help. Now I'm in adult services and there's lots of treatment options out there and not much chance of falling through the net, and I know if I don't get better it's going to kill me. anyone gone inpatient? Did it help? What was it like? How long did you stay for? what outpatient services have people had? I was referred to a dietician after a mostly unrelated health deterioration, but I've not heard from them at all. I'm starting to realise I am on a very slippery slope and have been for nearly 7 years and I think I want to get off, but the edge seems dark.
|
|
|
Post by Rebecca92 on Oct 13, 2013 16:28:36 GMT
Hi ellief, I've had quite a bit of contact with the adult ED services so I hope I can help a bit. I was in the Surrey/Berkshire catchment and treatment varies a lot per county. I saw my GP and was referred over for an assessment with an ED psychiatrist who diagnosed Anorexia. I then was booked into see a dietician and put on the waiting list for CBT. In the mean time, I saw the psychiatrist every 4 weeks to be monitored and saw my GP every month for blood tests to check my physical health etc. I was going to be discharged from CBT after having weekly sessions for 2 months as I had gained weight, but it started to go down again. After a period of a further 6 months being told "if you continue to lose weight you'll have to go to day care treatment" I thought my therapist was just using it as an empty threat. But I ended up in a 12 week day care programme in Ascot in their ED unit. It was 4 days a week, Mon-Thurs, 9am-2:20pm. In that time we had supervised breakfast, snack and lunch and weigh ins at 8:45am on a Monday morning. The programme included group therapy (which was actually really beneficial and helped me to not feel so isolated) on topics like body image, nutrition, learning about EDs, progress group etc etc. Meal plan was roughly 2,000 cals. There were a lot of rules in regards to weight gain. We were expected to gain 0.5kg per week (aprox 1.1lbs) and if not were given a 'warning'. If we didn't gain 0.5kg again the following week we would be put on a 'time out' where you couldn't come into the centre for that week and were expected to make the gain by yourself. If you lost more than 1kg (2.2lbs) it was an automatic time out. Since I left, they've changed it so if you don't gain for a second week, rather than a time out, you get an increased meal plan. I've not been inpatient myself but two of the people from my group have been in and out. Inpatient was always a last resort and meant a bed on the psychiatric ward under 24hr observation to check/prevent exercising in bed. This normally was/is for cases where physical health is seriously affected and BMI is terrifyingly low (I don't want to say specifics in case it's triggering but you can ask if you want more info). At this level, or below a certain BMI you would be in a wheelchair to go anywhere, even to the toilet round the corner. Gaining above that BMI threshold (which is still very low, I never was near to it tbh), meant you had permission to walk places again. The length of stay depends on weight gain etc. One of my friends was in there for near enough 3 months (with increasing amounts of 'day/weekend leave') and one of my friends has recently been admitted and has been there for 4 weeks. ---- I think the chances are that in adult services, everything moves a lot slower :/
|
|
|
Treatment
Oct 13, 2013 17:01:25 GMT
via mobile
Post by ellief on Oct 13, 2013 17:01:25 GMT
Thanks. My care co-ordinator tried to refer me to eating disorder services but because im not severely underweight they won't take me. So basically they're going to watch me hurt myself, until it's really dangerous weight wise, then put me on a waiting list. My GP has referred me to a dietician, but right now im slipping so fast I don't think I can or half the time even want to get better. And clearly they think there's nothing worth treating either or they'd help. (sorry, having a bad day)
|
|
|
Post by Rebecca92 on Oct 14, 2013 9:25:07 GMT
I get you. At the moment I'm not significantly underweight 'enough' for me to be on the waiting list either. I've just transferred over to my services at home after finishing uni and I'm going to have to wait to hear something back from the ED services after talking to my GP... I have no idea how long it will be. In the mean time, my care coordinator wants nothing to do my ED which is surfacing it's unhappy head again -.-
All you can do it hold on tight. I know that sounds like the worst piece of advice ever but it's from someone in the same situation <3
|
|